Opened Wound

”I think she died as a consequence to xyz decision YOU made…” – – – Swoosh, the dagger was plunged! Expertly removing the freshly formed scab. The bleeding hasn’t stopped. Just when one thinks that there’s any semblance of healing, the questions and doubts come back with a vengeance.

Doesn’t this person know that I’ve dissected every step and decision made and agonized at the very thought that I might have missed something? Does this person not see that I would have never, knowingly harmed my baby girl?

”Sorry, I didn’t mean to hurt you…” came, BUT I had already plunged deep, deep into the darkness of my soul. The fog descended, surrounding me with guilt and shame. Once again, the light and air, snuffed out; the wound opened and raw.

Castigating thoughts from without, joining hands with the thoughts from within.

Shame

“…I couldn’t imagine confessing the anxiety which whispered white noise in my ears. What would fellow Christians think about the black dog of depression often barking louder than the voice of God?…” ~ Steve Austin

I’m floundering. I don’t fit in anywhere. Too “holy” (haha!) for the world. Not “saintly” enough for the church. In God’s providence (yes, I still believe…) I came across Steve Austin on Twitter. No, no magical story, he “just” turned up on my feed. I’m not completely familiar with all that he proclaims, just this quote just hit me raw.

So, we don’t have a “home church”. Since we came to faith we have always “belonged” somewhere. Crazy how that high school mentality of belonging continues even as adults. Yeah, we don’t belong to the popular crowd…anymore. We are outsiders. Now, don’t get me wrong, there’s tons of people that would love for me to be in their “group”. I’d be an amazing token to show off what God can do! Sexually abused as a child, raped, domestic violence, alcohol abuser AND now, the cherry on top, the death of her daughter to cancer. Can you read the BOLD letters on the billboard? But no, I’m just a used up, discarded “saint” that has disappointed the masses. No victory story here.

Just this Sunday we visited a church. It’s a small crowd of smiling welcoming people. Maybe this one? I thought. After service they were having lunch together. We were invited. I panicked. We rushed out. Once in the car, I felt “safe”. Where they mean and snotty? No! Far from that. But my brain went to all kinds of scenarios. Some, real and others, well, made up…I guess.

Back in my “corner” with thoughts of how messed up I am and wondering how in the world I got here. And, thinking this is how it’s going to be…sigh😔

I got this!

Hand me the gavel. Give me the whip. I got this! I’m an expert at wielding just the right blow. I know just where to hit. I got fifty plus years of practice. Don’t you know, practice makes perfect? My perfectionist self continues to wield the weapons until the perfect blow renders me “wilted and useless”.

It’s exhausting to be both the offender and the judge, but one word or phrase hits the brain and the onslaught unravels. How to stop the onslaught, is not an art I have mastered. On the other hand, laying it on hard and heavy, well, it’s so easy. I’m a natural.

”They must think…” “Yup, they are tired of dealing with me.” “Did they mean…?” And on and on it goes. You see, I not only got my own thoughts castigating me, I put words in your mouth as well. Cause I’m just talented like that.

I will isolate myself, AGAIN, cause this talent needs lots and lots of work. And, solitude, is the perfect environment for it.

Don’t worry…I got this!

Land Mine

Learning how to not get stuck in my Scrambled Mind and to accept my Brain Explosion Let’s just say, “I’m getting better at it”.

I guess I’m a sucker for punishment…I ventured into the black hole (FB). Yup, self-control went out the door. So, who knew there was a National Daughter’s Day? Is there “a day” for everything? Goodness, gracious! Post after “beautiful” post oozing with inspiration. Allow me to let you into my brain:

what?! seriously! did you have to post that? what if your daughter was dead? I know, I’m going to post a picture of my daughter’s gravesite with “Happy National Daughters Day” and see how you like it —- wait, hold on, what if my daughter was still alive? I’d probably be posting an oozing post as well. it’s not their fault your daughter died and their is still alive —- LOG OUT! No! Why? You’re being triggered. So! Sobbing I lay down and lick my wounds…

Land mines are all around me. I’m aware that some I step in by mistake. Others, well, I see them and step right in. Navigation system is so complicated. Short circuits here, short circuits there, but we continue…

 

Diet

What are you feeding on? Yeah, no, not going into a post about Nutrition although We Need Food I’m talking about what are you feeding your brain?

PTSD has “a mind of its own” and can be pretty chaotic, however, I’m continuing to learn (key) that if I’m gorging on “negativity” this adds to the mess. Being off social media was a prescriptive-order from my therapist. I honestly didn’t think “it” a problem. However, as I was being inundated by news of people ending their life, I can now say this wasn’t helping my already ongoing thoughts of ending mine.

When my daughter passed away, I went on a reading binge about people who had lost loved ones. Now, there is a time for all things and it was good for a time, but a constant preoccupation with the subject keeps me STUCK on death with no space for living. I’m currently in a place where I can dimly see that this not only hurts me but also hurts those that are left behind. Now, was this a purposeful action? NOPE! However, it was happening and I’m aware of it, now.

Back when I was first diagnosed with fibromyalgia I remember being so desperate for information that I was reading everything about the subject. Goodness, was this a downer. Am I saying you don’t educate yourself? Not, in the least. All I’m saying is that I was borrowing from tomorrow and forgetting about today. And, for some reason I was focusing on the worst case scenarios. Something about my brain that does that.

Anywho, I desire to choose wisely what goes into my brain. My Frail Frame needs to be cared for as a whole. My brain needs a healthy diet as well. Am I saying I’ll never read the ugly? Nope! Just not obsessing with it. Am I going to live with my head on the clouds? Nope, but a bit of an aerial look never hurt anyone. Is this life all their is? Nope, but I’d be foolish to not enjoy the beauty of today.

My mind is a beautiful, intricate part of my whole being. Choosing to care for it well.

 

 

Trying to Get Back

Ya’ll still here? It’s been a L-O-N-G “minute” since I last posted. Goodness life just tumbles through, doesn’t it?

My laptop has taken “ill” so I am attempting to type on an IPad…yeah, not working as smoothly and speedily as I’d like, but I was itching to get back to my writing routine.

An update (in summary): I’ve been “down”, pretty crazy how dark it can get. Made more changes in the pursuit of caring for my mental health. We moved. Adjusting to a new town. I lived in the same town since we came from Mexico in 1975, so theirs tons of adjustments. One being trying to reconcile, in my chaotic brain, that I haven’t abandoned my daughter since the cemetery where her remains lay is further away. Yeah, working through things that might be “normal” to some, to me seem like huge unsurmountable mountains. But learning and trying is the name of the game, and, at the moment, I’m ok with that.

”Routine” is my friend, but it seems to be hiding. And, again, learning that the dictates of my brain, at times, need to be silenced. Trying not to be so hard and rigid so as to flow and enjoy those blessed moments of sanity.

OHHHHHH, guess what? We are expecting our first granddaughter in February! Oh the joy! Yup, the sweetness of a life bringing us lots of sunshine! Hearing her heartbeat for the first time was surreal.

Our life journey continues. Whoever is still here, I’m glad we are walking together. Your companionship is a gift.

YOU would tell me…

My attempt to participate in the “writing through your grief” group was completely stunted by horrible triggers which sent me spiraling for days. Continuing to practice ‘being kind to myself’ I bowed out. Maybe another time, maybe never, who knows. However, the following prompt caused me to pick up my pen…

“How would you love me in this?”

“If I imagined you speaking…you would tell me…”

How would you love me through this? Goodness, you’d be absolutely heartbroken that I’ve been so incredibly sad and inactive. I remember the day we got the “final-NO” in your care. We got home, put you to bed. A family member was here to help (so grateful!), so I was able to go into the back yard to ‘breathe’. I gave your Dad and Brother the latest news, then I walked to that block wall and screamed, “I can’t…!!!” I sobbed, not sure what else I said. Punching that wall was so tempting. Before I knew it, your brother’s tender arms drew me in and held me. Safe…calm…breathe…hold it together. I came back to your side. The sight of your little face was oh, so sad and you were crying. I said, “what’s the matter? Are you ok?” Crying, you answered, “I’m sorry Mom, for hurting you.” YOU HAD HEARD MY BREAKDOWN and blamed yourself for causing my tears and pain. This memory still haunts me. I was mad at myself, mad at the world, BUT NOT YOU. My precious girl ‘taking care of Mom’ as she was finishing her earthly race, God, I have much to learn from you.

You hated to see me sad. You never wanted me to hurt emotionally or physically. You watched me and cared for me.

I remember difficult moments when I’d say, “Angie, I need a hug.” On good days you’d come to me and hug me. On difficult days, you’d say, “Come here.” I’d go to your bedside or couch and lean to you and you’d hug me.

You hated when I was too “homie”. From your small allowance, which by the way you were an amazing steward of, you’d say, “Come on Mom, I’ll buy you lunch.” I’d tell you I could pay so you could use your money for your Starbucks runs, but, no, you wanted to treat me. So we’d go and have Jack-in-the-Crack (haha! that’s what you’d call it). Two ninety-nine cent tacos, fries and a coquita. Caffeine was your friend.

What would you say to me now? Maybe, “Ahí, Lady, what are you doing? I am so JOYFUL. I am with my Savior, where I longed to be.”

I would hope you’d say, “You did everything you could. At the end, I didn’t feel any pain. I heard your goodbyes. I felt your touch.”

I know you’d say, “I am so happy Chubbs is there all the time. And, I love Maria.”

“I’ll see you soon, Mom!”

 

Stinging Words

I thought by now you’d be better” and so began a conversation that is often avoided. Already riddled with anxiety, the body responded with further tension and frustration.

‘Thinking before speaking’, what a concept! It has been said, “if you have nothing good to say, say nothing at all.” Is there a ‘mute’ button anywhere? Maybe the “walking-dead” is not such a far fetched concept.

My Grieving Friend has said, “it is a constant teaching moment.” Somewhere along the line I would like to stop teaching, please!

If I’m in a good-place, I might simply smile or even mumble a cordial reply. However, if I’m already depleted from fighting my own personal assaults then I’ll yank you right into my struggle. Verbal punches and blows will be thrown…be forewarned. Then, I’ll either walk away victorious having dodged another bullet or I’ll continue the barrage of self-hatred due to my inadequacy of properly handling another encounter poorly. Yeah, people encounters are just not “my-thang”.

I am constantly told that isolation isn’t good for me. Ha! Are you kidding me?!?! At least when I am alone my opponent is one not a multitude. I am seriously contemplating a bungalow in a deserted island…just sayin.

Explaining…explaining…explaining…

Defending…trying to make people understand…is

E-X-H-A-U-S-T-I-N-G!!!

A Fretful Day

Another horrid night. Enthralled in the unraveling of a life…watching…waiting. The ground ebbing away. The gut stuck to the spine. A pressure cooker waiting to explode. She sat at the table staring at papers that “seemingly” held life and death in it’s lines. The words “DO NOT RESUSCITATE” glaring at her; daunting her. It’s meaning incomprehensible, yet it’s reality could not be escaped.

How did she go from signing a birth certificate to signing papers that would mark her daughter’s demise? She sat numb, frozen…staring into nothingness. A frigid chill enveloped her from within; from without. Was she even breathing? Finally, as in a trance, hand to paper as ink flowed. “Ready pen” was not ready for this.

Her daughter’s screams, “Help me Mom!” Her whisper, “No more appointments, Mom.” That tender and loving stare speaking without a word, “are you going to be ok?” My audible words, “Angie, it’s ok to go. I give you permission. I’m going to be ok. I will miss YOU so, so much, but it’s ok to go.” Her surrender, “ok”.

Tumbling, tumbling in her brain…words, gestures. All ending at this table, making decisions that could never be changed.

Two years have passed since this fretful day, yet its memory is as palpable as today.

“only to the extent that we expose ourselves over and over to annihilation can that which is indestructible be found in us.” ~ Pema Chödrön

Diagnoses

“A diagnosis doesn’t define me.” A liberating statement, indeed. However, there are times one can not just “speak away” once ailments. We are all different. There is not a one size fits all remedy. Trial and error, and try again is the name of the game. A cooking cutter mentality is not a healthy approach.

In 2002 I ended up in a fetal position, seemingly out of the blue, unable to function. Tests, tests, and more tests, with frustration and annoyance as part of the ride. The end result a diagnosis of Fibromyalgia and chronic fatigue. Meds, home remedies, etc., etc., trying everything to beat these ailments. Yup, even got the typical “it’s all in your head. Just push through.” I’ve learned that it’s chronic. Sometimes I know exactly what brings on a flare up and sometimes I have no clue.

Then there was the time I was diagnosed with degenerative osteoarthritis. No, this diagnosis didn’t define me, but it sure did change the way I do things. Amazing doctors and physical therapists have educated me on what to do to keep myself mobile and what not to do to aggravate things.

Now I’m faced with debilitating anxiety and depression. With the help of my medical doctor we decided it was time to see a therapist. With the support and guidance of my medical team and my family we are exploring ways to help me deal with and cope with these new companions. Will they come and go? Will they stay for a season or will they be with me for the rest of my life? These and other questions are on the table.

My diagnoses don’t define me, but they are part of me. They don’t undo me, but, at times, they do cause me to be laid out. I find accepting this is easier on my physical and mental health than trying to “push through”.

Learning is liberating. Fighting is exhausting.