Diagnoses

“A diagnosis doesn’t define me.” A liberating statement, indeed. However, there are times one can not just “speak away” once ailments. We are all different. There is not a one size fits all remedy. Trial and error, and try again is the name of the game. A cooking cutter mentality is not a healthy approach.

In 2002 I ended up in a fetal position, seemingly out of the blue, unable to function. Tests, tests, and more tests, with frustration and annoyance as part of the ride. The end result a diagnosis of Fibromyalgia and chronic fatigue. Meds, home remedies, etc., etc., trying everything to beat these ailments. Yup, even got the typical “it’s all in your head. Just push through.” I’ve learned that it’s chronic. Sometimes I know exactly what brings on a flare up and sometimes I have no clue.

Then there was the time I was diagnosed with degenerative osteoarthritis. No, this diagnosis didn’t define me, but it sure did change the way I do things. Amazing doctors and physical therapists have educated me on what to do to keep myself mobile and what not to do to aggravate things.

Now I’m faced with debilitating anxiety and depression. With the help of my medical doctor we decided it was time to see a therapist. With the support and guidance of my medical team and my family we are exploring ways to help me deal with and cope with these new companions. Will they come and go? Will they stay for a season or will they be with me for the rest of my life? These and other questions are on the table.

My diagnoses don’t define me, but they are part of me. They don’t undo me, but, at times, they do cause me to be laid out. I find accepting this is easier on my physical and mental health than trying to “push through”.

Learning is liberating. Fighting is exhausting.

Mourning

Mourning began the day of your diagnosis, and so it went…

your body, your face…changing before my eyes. somber faces all around, unable to tell me what I “knew” was coming…BUT had no idea the train wreck it would be.

oh, there was laughter and glimmers of hope, BUT  sorrow and grief were waiting at the door. Ah, the tsunami that would soon engulf me…no way to prepare.

your body, a shell of what it had been. your face, tiny, ashy. your eyes, sunken, shut. your mouth…no more sounds. how? why? ugh!!!

Mourning continued…BUT, oh what awaited, who can prepare?!?!

cold, horridly cold…a shiver shaking my body…that hasn’t stopped

relentless reel playing over and over…your little body placed in a bag. a dark, cold van. a white box – why?!?! how is this even possible?

AND then the inevitable. You know it’s coming, BUT…

the white box, that contains your earthly shell – so precious – is lowered, covered AND you are forever GONE!!!

Unraveled! Undone! Short Circuited! Forever Changed!

Almost twenty-three months…mourning continues…

it will continue until the day we are together, AGAIN ❤

Unwelcome Friend

Ah, my unwelcome friend, you’re back!

Your unannounced visits can be so aggravating,

the length of your stay unknown.

The continual task of learning to welcome you, to embrace your presence

can be exhausting and debilitating.

Your mysterious character unravels me

I don’t understand you! I can’t figure you out! I can’t defeat you!

Accepting your presence; embracing your constant companionship

…is…well…healthier…I guess…

Dare I ask that your visits be less often? shorter? or none at all?

AND, so, I sit with you, my unwelcome friend…

in acceptance and surrender

learning to simply be…

Stuck

The path has been riddled with puddles of quicksand. No warning signs, no brights lights signaling its upcoming presence. Step, step…STUCK! Step, step…STUCK! In my clear, unstuck moments I’m aware of those that “turn-on” the light and give me a hand, or literally carry me on to the next step…even when I am “done”, with no fight in me.

♥⇒My husband. how? why? does he get tired? will he get tired? gentle, quiet…my man! 35 years and counting…what grace!

♥⇒My Son. he needs his Mom. I need him. he is dealing with the loss of his sister and a Mom that often, checks out. what goes through his mind? does he feel like he’s not good enough to keep me going? is he pressured? is he afraid? my gentle giant! my boy! 34 years old and counting…what grace!

♥⇒My Son’s Girlfriend. loves me. respects me. cares for me. makes me laugh. cries with me. makes me feel so incredibly important. drops everything and sits with me as I spiral, vomiting chaos…AND she is simply there. her presence settles me. her hugs squeeze life into me. how? why? she doesn’t have to? Counting the days, months and years…what grace!

My friend who dropped everything and sat with me at coffee. That roller coaster conversation, with deep lows and huge highs. Sparks, tears and laughs. No judgment. No pat answers. Just grace. My Grieving Friend who spends hours with me on the phone, because distance prevents us from sitting with each other. Twenty years into her journey, which scares the poop out of me, because I can’t even fathom the thought of being without my daughter one moment further. Yet, she speaks Angie’s name, remembers her, talks about her and allows me to talk and talk, and repeat myself over and over…cause one cannot say the story enough. She does, however, remind me and shows me that “it” does get softer. My massage therapist, who is a gift. She not only takes care of this “balled-up-crackly” body, but speaks life into me. As I was leaving from my massage she held me and told me, “You matter! You bless me! Don’t give up! I’m praying for you!” She squeezed me and held me. What grace!

♥⇒My Lifelong Buddy. goofy and all, she demonstrates an unwavering strength of love and loyalty. she doesn’t retreat. she doesn’t stay away from the ugly. she barges in and stays. she constantly puts soft “sponges” on the sharp edges of this porcupine.

God shows up everywhere, surrounding me with these amazing humans. Showering me with love and care. Oh, mercy and grace to sit here and type and breath and take one more step♥

~ Spring always follows Winter  ~

It’s Me :)

Howdy y’all 🙂

Checking in. Wondering who’s still “following”. Desiring to keep writing freely. It’s been down right brutal around here. I’ve taken my therapist’s advise to just “surrender” and let the waves “hit” until they pass, but man this has been a tsunami-type episode. The thoughts of ending it all have been fast and furious. Soooooooo, grateful for the amazing grace of God and the unconditional love of my family.

I’ve been “out” most of the time. Yes, the nightmares don’t stop, but somehow sleeping gives me some relief.

AND SO, we continue to walk; to limp; to crawl or to be splattered on this journey of life. Until God calls me home – I type it, accept it and pray for endurance beyond my human ability. Hope to have you along 🙂

Grief Group

She decided it was time. One day short of twenty-one months. Tic-Toc, Tic-Toc…can you hear time churning? Thankful for a peaceful commute, and a settled mind focusing on navigating directions. It’s here! Deep breath, prayer…more breathing…let’s go!

Two women buzzing around. Do they see me? No smile, no hello…wait, am I at The Writer’s Club? Deep breath…just stay; fight the urge to run out. “Oh, wait, another women just arrived. She’s too bubbly to be here”, was her immediate thought. This is so painfully awkward. Being an Introvert makes the silence worse. And, so began a grueling two hour ordeal…

“What am I trying to prove? Who am I trying to impress? Why put myself in a torturous situation? Do I not hurt enough? How is it that my mindset is so skewed, so jumbled? I HATE THIS!!!”, and so went an onslaught of chaotic waves of thought, upon thought, upon thought.

There were times I thought, “Yes, the Plastic Faces are coming off!” NOT! Only a glimpse was allowed before the masks were securely fasten, back into place…let’s continue the masquerade.

“Why? What are we afraid of? Is reality so difficult, I’d rather live a lie? Do I not want to be open and vulnerable because of fear? Fear of judgment; fear of being misunderstood; fear of what?”, waves and waves of punches of the mind.

Someone decides to vomit; to splatter all she has been holding onto; to open the gates of her mind in a relentless way. The vent up guilt, trauma flowing. The wrestling with what she thought she knew, which pales in comparison to what is happening to her day after day. She doesn’t shut up! She keeps going! Only to get cliches and pat answers. GRRRR!!!

As I am in my chair, shaking uncontrollably! Being horribly triggered by the rawness of this woman. “Run! Go! Escape! Make her shut up! Why is she saying that? I can’t hear this anymore!”, thoughts that came into the spiraling mind. With the added guilt of not being compassionate enough. However, how do I help her out when I’m in my own spiral?

Home now. “How did I get home? What happened?” Unceasing crying and screaming with tumultuous spasms ensue. Beating myself up for not knowing better; for going, too soon; for not being in control.

Finally safe, curled up in a ball…spaced out, exhausted…sleep is welcomed. BUT the nightmares and images assailed my already beat-up soul. And, so, goes my journey with grief…an unwelcomed companion.

Yeah, I’m thinking it wasn’t time – for this :-\

The Day After

Made it to the other side. The fog has cleared. The tightness released. Now the Grief Unchained and the Unfiltered thoughts are released…brace yourself!

My God has not shrunk. My faith has not been diminished. In fact my faith is what keeps me from ending it all; from escaping this world that seems to be vent on adding vinegar to my wound.

You telling me that Angie is on your heart and mind, doesn’t diminish my pain and envy that you are celebrating your daughter’s special day. Do I always have to take the high road? Do I always have to think nice happy thoughts? Can you allow me to be real and honest about my sorrow and grief? Does it always have to be kosher?

So there’s a timeline? But it has already been x-amount-of-days! Oh, excuse me, I didn’t realize that I’m not on your timetable. I didn’t realize that my grief had an expiration date. Don’t you know that one second without my daughter is an eternity? Don’t you know that until she’s in my arms, I will ache to hold her? Don’t rush me! Don’t patronize me!

You can’t handle my “thoughts”. The continual horrid movie playing, nonstop – unrelenting. My daughter wasting away, until she’s only skin and bones. My daughter vomiting her insides. My daughter looking at Mommie, asking for help. My daughter crying, saying she doesn’t want to die. AND, I, unable to grant her wish. That body bag! That casket! That deep hole!

My Reality! My Journey!

Just another day in the life of a grieving mother😢💔

Unpredictable Waves

~ wave after ~ wave ~ after wave

how to prepare? how to brace?

unpredictable, unseen, unexpected

laid out, crumbled…yet, fighting to breathe

screaming, punching, tearing at my flesh

numb yet fully engaged…quiet yet horribly loud

the spirals that comes from nowhere

the feelings that are everywhere

once again, it hits…AND there’s nothing to do, but…

Just Breathe…

The Lego Effect

Have you ever stepped on a Lego? Walking into a room, minding your own business, when WAMMO! The pain, the agony, jerk, the bouncing on one leg…did I mention the pain?

Yup, I’ve hit a wall! I’ve “stepped” on a gazillion legos. Grief is such an intricate beast.

This month has been filled with Baby Showers, Bridal Showers, Birth Announcements, Wedding Invitations, and on and on. I have been purposeful about making decisions to attend or not to attend without feeling guilty or like I “have-to-be-there” (therapy is helping). Can I just pat myself on the back, cause, I believe I’ve done well, thank you!

BUT it hit! And, it hit hard! Horrid panic/anxiety attack. Anger. Screaming. Stomach knots. Difficulty breathing.

I’ll never see my daughter in a wedding dress…I’ll never hold her child….I’ll never celebrate with her a birth announcement….I’ll never…I’ll never…I’ll never…SCREAM!!!!!!!!!!

~ Sigh ~

When my brain quiets down, I KNOW my daughter is not missing out on anything. She is whole and complete. I have peace and assurance that I will hold her in my arms again. Then, and only then, will this assault of my mind and emotions will be over.

In the meantime, I hunker down and allow the waves to come. I don’t fight my feelings and emotions or condemn myself for feeling this way. I’m learning to ride them out. And, as I step on them “legos”, I’ll jump and scream and writhe in pain. It won’t be forever, cause there’s no legos in heaven 😉